Transfusion Complications in Thalassemia: Patient Knowledge and Perspectives.

ABSTRACT: Chronic transfusion, used to manage clinically significant forms of thalassemia, carries complication risks including iron overload, alloimmunization, and allergic or hemolytic reactions. Dissemination and implementation of evidence-based guidelines for minimizing these risks are complicated by the small numbers and increasing dispersion of the thalassemia population. This elevates patients' role in understanding and communicating with providers about treatment. The present study sought to assess thalassemia patients' knowledge of transfusion, complications, and guidelines; their experience of clinicians' following guidelines; and their perspectives on ways to store and share personal transfusion data. A convenience sample of 32 patients participated in structured interviews. Most, if not

SUBMITTER: Patterson S 

PROVIDER: S-EPMC8923080 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature