How myeloproliferative neoplasms patients' experience and expectations differ from physicians': the international MPN Landmark survey.

ABSTRACT:

Background/aims

Recent advances in the understanding of the pathophysiology of myeloproliferative neoplasms (MPN) were not paralleled with advances in treatment options; thus many questions regarding optimal MPN management remain unanswered. Here, we report the results of descriptive survey study of Korean MPN patients and their attending physicians.

Methods

A total of 105 Korean patients (myelofibrosis [MF], 39; polycythemia vera [PV], 25; essential thrombocythemia [ET], 41) and 30 physicians completed the Landmark Health Survey, then data from the survey were analyzed.

Results

Among the MPN-Symptom Assessment Form symptoms, the most severe symptom reported was 'fatigue or tiredness' in MF and ET patients and 'itching' in PV patients. The majority of the patients agr

SUBMITTER: Byun JM 

PROVIDER: S-EPMC8925951 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature