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Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study.


ABSTRACT:

Background

Patient and public involvement (PPI) is a cornerstone in enhancing healthcare research and delivery, including clinical guideline development. Health outcomes concern changes in the health status of an individual or population that are attributable to an intervention. Discussion of relevant health outcomes impacts the resulting clinical guidelines for practice. This study explores how the input of PPI contributors at the National Institute of Health and Care Excellence (NICE) is integrated into guideline development, particularly in relation to health outcome selection.

Methods

The study used an ethnographic methodological approach. Data comprised: observations of committee meetings, scoping workshops and training sessions, and in-depth interviews with PPI contrib

SUBMITTER: Biggane AM 

PROVIDER: S-EPMC8933885 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature