The Impact of COVID-19 on Patient, Family Member, and Stakeholder Research Engagement: Insights from the PREPARE NOW Study.

ABSTRACT:

Background

Little is known about the impact of COVID-19 on patient, family member, and stakeholder patient-centered outcomes research engagement.

Objective

To answer the research questions: (1) What is the impact of COVID-19 on the lives of patients with kidney disease and their families? (2) What is the impact of COVID-19 on research engagement for patient and family member research team members who are themselves at very high risk for poor COVID-19 outcomes? and (3) How can we help patients, family members, and stakeholder team members engage in research during COVID-19?

Design

We conducted virtual semi-structured interviews with patient and family member co-investigators and kidney disease stakeholders from the PREPARE NOW study during November 2020. The interview

SUBMITTER: Browne T 

PROVIDER: S-EPMC8960674 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature