Caregivers' experience of seeking care for adolescents with sickle cell disease in a tertiary care hospital in Bahrain.

ABSTRACT:

Objective

This study aimed to determine caregivers' perspectives on difficulties encountered while seeking care for adolescents with sickle cell disease (SCD). It explored the social, emotional, and financial impact of caring for an adolescent with SCD on their caregivers.

Study design

A mixed-method study in a major tertiary care hospital in Bahrain was conducted between June and August 2019. Cross-sectional questionnaires and thematic analyzed interviews were performed with 101 and 18 Bahraini caregivers of adolescents with SCD (aged 10-18 years), respectively.

Results

Lack of parking lots (52.5%) and traffic jams (27%) were identified as the most common challenges in seeking hospital care for adolescents with SCD. These difficulties, including prolonged waiting in

SUBMITTER: Al Saif K 

PROVIDER: S-EPMC8989311 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature