What ethical approaches are used by scientists when sharing health data? An interview study.

ABSTRACT:

Background

Health data-driven activities have become central in diverse fields (research, AI development, wearables, etc.), and new ethical challenges have arisen with regards to privacy, integrity, and appropriateness of use. To ensure the protection of individuals' fundamental rights and freedoms in a changing environment, including their right to the protection of personal data, we aim to identify the ethical approaches adopted by scientists during intensive data exploitation when collecting, using, or sharing peoples' health data.

Methods

Twelve scientists who were collecting, using, or sharing health data in different contexts in Sweden, were interviewed. We used systematic expert interviews to access these scientists' specialist knowledge, and analysed the interviews w

SUBMITTER: Viberg Johansson J 

PROVIDER: S-EPMC9004072 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature