Development and evaluation of a website with patients experiences of multiple sclerosis: a mixed methods study.

ABSTRACT:

Background

A variety of management options (e.g., disease-modifying therapy, lifestyle interventions, rehabilitation) are available for persons with relapsing-remitting multiple sclerosis (MS). Besides coping with the diagnosis, persons with MS have to make complex decisions, e.g., regarding disease-modifying therapies. In addition to factual information, reports of patient experiences may support other patients in their decision-making. Therefore, we developed a website presenting patient experiences illustrated by video, audio and text files. This study aimed to test the acceptability and usability of a website with patient experiences with MS.

Methods

A mixed-methods approach was applied. A total of 69 participants visited the German "Patient Experiences with MS (PExMS)"

SUBMITTER: Sippel A 

PROVIDER: S-EPMC9019288 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature