'I thought I had fibroids, and now I don't': a mixed method study on health-related quality of life in uterine sarcoma patients.

ABSTRACT:

Background

Uterine sarcomas are rare subtypes of primary urogenital tumours and need tailored treatment. This study aimed to examine the impact of diagnosis and treatment on health-related quality of life (HRQoL) in patients with uterine sarcoma and measures available to assess HRQoL in this group.

Methods

Thirteen patients with uterine sarcoma and 23 health care professionals were purposively sampled from sarcoma reference centers and participated in a semi-structured interview exploring HRQoL. Patients were also asked to review the EORTC QLQ-C30 and EORTC QLQ-EN24 for relevance. Data were analysed using thematic analysis and descriptive statistics.

Results

The most commonly reported physical health issues were related to sexual dysfunction and urological symptoms. H

SUBMITTER: den Hollander D 

PROVIDER: S-EPMC9020416 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature