Stakeholder-informed conceptual framework for financial burden among adolescents and young adults with cancer.

ABSTRACT:

Background

Cancer and its treatments can result in substantial financial burden that may be especially distressing for adolescents and young adults (AYAs) since they are at a developmental stage focused on completing one's education and establishing independence. The purpose of this study was to develop a conceptual model of financial burden among AYA cancer patients to inform development of a financial burden measure.

Methods

In-depth concept elicitation interviews were conducted with a purposive-selected stakeholder sample (36 AYAs and 36 AYA oncology health care providers). The constant comparative method was used to identify themes that illustrate AYAs' experience of financial burden by stakeholder groups.

Results

Eleven financial burden themes emerged: (1) impact

SUBMITTER: Danhauer SC 

PROVIDER: S-EPMC9023074 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature