The Needs of Adolescents and Young Adults with Chronic Illness: Results of a Quality Improvement Survey.

ABSTRACT: Adolescent and young adults (AYAs) with chronic illnesses cope with complex issues that require unique psychological support and healthcare services to reduce psychosocial difficulties, improve disease management, and facilitate positive transitions to adult care. Engaging patients and caregivers can help providers understand the specific needs of this population and identify the perceived areas of support. The purpose of this quality improvement initiative is to assess the needs of AYAs with chronic medical conditions at a large government research hospital. Eighty-nine AYA patients (age = 23.5 years; range 13-34) with neurofibromatosis type 1, cancer, primary immunodeficiencies, or sickle cell disease, and a sample of caregivers (n = 37, age = 52 years; range: 41-65), completed an

SUBMITTER: Allen T 

PROVIDER: S-EPMC9025253 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature