Discrimination, trust, and withholding information from providers: Implications for missing data and inequity.

ABSTRACT: Quality care requires collaborative communication, information exchange, and decision-making between patients and providers. Complete and accurate data about patients and from patients are especially important as high volumes of data are used to build clinical decision support tools and inform precision medicine initiatives. However, systematically missing data can bias these tools and threaten their effectiveness. Data completeness relies in many ways on patients being comfortable disclosing information to their providers without prohibitive concerns about security or privacy. Patients are likely to withhold information in the context of low trust relationships with providers, but it is unknown how experiences of discrimination in the healthcare system also relate to non-disclosure. In th

SUBMITTER: Nong P 

PROVIDER: S-EPMC9035429 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature