"A cohort of pirate ships": biomedical citizen scientists' attitudes toward ethical oversight.

ABSTRACT: As biomedical citizen science initiatives become more prevalent, the unique ethical issues that they raise are attracting policy attention. The ethical oversight of bottom-up biomedical citizen science projects that are designed and executed primarily or solely by members of the public is a significant concern because the federal rules that require ethical oversight of research by institutional review boards generally do not apply to such projects, creating what has been called an ethics gap. Working to close this gap, practitioners and scholars have considered new mechanisms of ethical oversight for biomedical citizen science. To date, however, participants' attitudes about ethics and oversight preferences have not been systematically examined. This information is useful to efforts to dev

SUBMITTER: Trejo M 

PROVIDER: S-EPMC9037960 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature