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Dataset Information

Impact of endometriosis on women's life decisions and goal attainment: a cross-sectional survey of members of an online patient community.


ABSTRACT:

Objectives

To examine women's perceptions of endometriosis-associated disease burden and its impact on life decisions and goal attainment.

Design

An anonymous online survey was distributed in October 2018 through the social media network MyEndometriosisTeam.com.

Participants

Women aged 19 years and older living in several English-speaking countries who self-identified as having endometriosis.

Outcome measures

Patients' perspectives on how endometriosis has affected their work, education, relationships, overall life decisions and attainment of goals. Subanalyses were performed for women who identified as 'less positive about the future' (LPAF) or had 'not reached their full potential' (NRFP) due to endometriosis.

Results

743 women completed the survey. Wo

SUBMITTER: Missmer SA 

PROVIDER: S-EPMC9047767 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature