Advance Care Planning Needs in Idiopathic Pulmonary Fibrosis: A Qualitative Study.

ABSTRACT:

Introduction

Advance care planning is recommended in chronic respiratory diseases, including Idiopathic Pulmonary Fibrosis. In practice, uptake remains low due to patient, physician and system-related factors, including lack of time, training and guidance on timing, components and content of conversations. Our aim was to explore perspectives, experiences and needs to inform a framework.

Methods

We conducted a qualitative study in western Canada, using semi-structured interviews and inductive analysis. Patient, caregiver and health care professional participants described advance care planning experiences with Idiopathic Pulmonary Fibrosis.

Results

Twenty participants were interviewed individually: 5 patients, 5 caregivers, 5 home care and 5 acute care health care prof

SUBMITTER: Kalluri M 

PROVIDER: S-EPMC9082969 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature