Views and experiences of young people, their parents/carers and healthcare professionals of the advance care planning process: A summary of the findings from a qualitative study.

ABSTRACT:

Background

Advance care planning for young people is relatively new in the UK. There is a lack of understanding about the engagement of young people in their own planning process, optimal timing of discussions and the facilitators and barriers to the engagement of young people.

Aim

To explore the views and experiences of young people, their parents/carers and HCPs of the advance care planning process.

Design

A qualitative study, using semi-structured interviews with young people, their parents/carers and healthcare professionals across four case series. Data were analysed using thematic analysis.

Participants

Fifteen participants were interviewed: young people (n = 2), parents/carers (n = 5) and healthcare professionals (n = 8).

Results<

SUBMITTER: Hughes B 

PROVIDER: S-EPMC9087310 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature