Spontaneously generated online patient experience data - how and why is it being used in health research: an umbrella scoping review.

ABSTRACT:

Purpose

Social media has led to fundamental changes in the way that people look for and share health related information. There is increasing interest in using this spontaneously generated patient experience data as a data source for health research. The aim was to summarise the state of the art regarding how and why SGOPE data has been used in health research. We determined the sites and platforms used as data sources, the purposes of the studies, the tools and methods being used, and any identified research gaps.

Methods

A scoping umbrella review was conducted looking at review papers from 2015 to Jan 2021 that studied the use of SGOPE data for health research. Using keyword searches we identified 1759 papers from which we included 58 relevant studies in our review.

Res

SUBMITTER: Walsh J 

PROVIDER: S-EPMC9106384 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature