Health Care Transition Perceptions Among Parents of Adolescents with Congenital Heart Defects in Georgia and New York.

ABSTRACT: With increasing survival trends for children and adolescents with congenital heart defects (CHD), there is a growing need to focus on transition from pediatric to adult specialty cardiac care. To better understand parental perspectives on the transition process, a survey was distributed to 451 parents of adolescents with CHD who had recent contact with the healthcare system in Georgia (GA) and New York (NY). Among respondents, 90.7% reported excellent, very good or good health-related quality of life (HRQoL) for their adolescent. While the majority of parents (77.8%) had been told by a provider about their adolescent's need to transition to adult specialty cardiac care, most reported concerns about transitioning to adult care. Parents were most commonly concerned with replacing the strong

SUBMITTER: Gaydos LM 

PROVIDER: S-EPMC9109153 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature