Development of the International Spinal Cord Injury Basic Data Set for informal caregivers.

ABSTRACT:

Study design

Mixed-methods, including expert consensus for initial development and a multi-center repeated measures design for field testing.

Objectives

To develop an International Spinal Cord Injury Basic Data Set for caregivers of individuals with spinal cord injury/disorder (SCI/D) for use in research and clinical care settings.

Setting

International, multi-disciplinary working group with field testing in five North American pediatric rehabilitation hospitals.

Methods

The data set was developed iteratively through meetings and online surveys with a working group of experts in pediatric and adult SCI/D rehabilitation and caregivers of individuals with SCI/D. Initial reliability was examined through repeat administration of a beta form with a sample of caregiv

SUBMITTER: Haywood C 

PROVIDER: S-EPMC9110939 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature