Decision-making approaches for children with life-limiting conditions: results from a qualitative phenomenological study.

ABSTRACT:

Background

For children with life-limiting conditions who are unable to participate in decision-making, decisions are made for them by their parents and paediatricians. Shared decision-making is widely recommended in paediatric clinical care, with parents preferring a collaborative approach in the care of their child. Despite the increasing emphasis to adopt this approach, little is known about the roles and responsibilities taken by parents and paediatricians in this process. In this study, we describe how paediatricians approach decision-making for a child with a life-limiting condition who is unable to participate in decision-making for his/herself.

Methods

This qualitative phenomenological study involved 25 purposively sampled paediatricians. Verbatim transcripts from in

SUBMITTER: Vemuri S 

PROVIDER: S-EPMC9112587 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature