Impact of education on APOL1 testing attitudes among prospective living kidney donors.

ABSTRACT: It is unknown how providing prospective living donors with information about APOL1, including the benefits and drawbacks of testing, influences their desire for testing. In this study, we surveyed 102 participants with self-reported African ancestry and positive family history of kidney disease, recruited from our nephrology waiting room. We assessed views on APOL1 testing before and after presentation of a set of potential benefits and drawbacks of testing and quantified the self-reported level of influence individual benefits and drawbacks had on participants' desire for testing in the proposed context of living donation. The majority of participants (92%) were aware of organ donation and more than half (56%) had considered living donation. And though we found no significant change in re

SUBMITTER: Nestor JG 

PROVIDER: S-EPMC9113661 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature