Neuropathic-like Pain in Fibrous Dysplasia/McCune-Albright Syndrome.

ABSTRACT:

Context

Pain is a major symptom in adults with fibrous dysplasia/McCune-Albright syndrome (FD/MAS) and response to current treatments, including bisphosphonates and standard analgesics (nonsteroidal anti-inflammatory drugs and opiates) is unpredictable. No studies have explored whether the type of pain is variable in this patient group.

Objective

To determine the frequency of neuropathic-like pain in patients with FD/MAS.

Design

Retrospective, dual registry study.

Setting

Community.

Patients

FD/MAS online registries: the US-based Familial Dysautonomia Foundation (FDF) and the UK-based Rare and Undiagnosed Diseases (RUDY) study.

Intervention

Subjects completed questionnaires to evaluate the presence of features of neuropathic-like pain (painDETECT)

SUBMITTER: Spencer TL 

PROVIDER: S-EPMC9113795 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature