Symptom experience of limited cutaneous systemic sclerosis from the Patients' perspective: A qualitative study^{✰,✰✰,★,★★}.

ABSTRACT:

Objectives

Limited cutaneous systemic sclerosis (lcSSc) is the largest subgroup of people with SSc, but little is known about symptom experience from the patients' perspective. This study aimed to comprehensively identify domains and symptoms reported as bothersome by patients with lcSSc and to analyze themes and sub-themes capturing symptom experience in this population.

Methods

Focus groups of patients with lcSSc were conducted using a structured guide. Patients were recruited based on an a priori purposive framework to include men and women with SSc. Focus groups were recorded, transcribed, anonymized, and analyzed using the RADaR technique (rigorous and accelerated data reduction) combined with iterative, deductive and inductive approaches.

Results

Four 2-hour Foc

SUBMITTER: Lescoat A 

PROVIDER: S-EPMC9131352 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature