"If I wasn't a girl": Experiences of adolescent girls with heavy menstrual bleeding and inherited bleeding disorders.

ABSTRACT:

Background

Heavy menstrual bleeding (HMB) is a presenting symptom of an inherited bleeding disorder (BD) and results in hospitalizations, limitations of daily activities, and a reduction in quality of life. Adult women with BD report a sense of stigma, difficulties understanding their bleeding, and challenges with diagnostic labels. The experiences of adolescents with HMB and BD are unknown despite advances in medical management through the rapidly growing network of young women's hematology programs.

Objectives

The objective of our qualitative study was to describe the experiences of adolescents with HMB with a BD and the impact on their day-to-day lives.

Patients/methods

Our qualitative study utilized semistructured interviews with adolescents with HMB after a BD di

SUBMITTER: Parker M 

PROVIDER: S-EPMC9152438 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature