User-Centered Design of the consideRATE Questions, a Measure of People's Experiences When They Are Seriously Ill.

ABSTRACT:

Context

No brief patient-reported experience measure focuses on the most significant concerns of seriously ill individuals.

Objectives

The objective of the study was to develop the consideRATE questions.

Methods

This user-centered design study had three phases. We reviewed the literature and consulted stakeholders, including caregivers, clinicians, and researchers, to identify the elements of care most important to patients (Phase 1). We refined items based on cognitive interviews with patients, families, and clinicians (Phase 2). We piloted the measure with patients and families (Phase 3).

Results

Phase 1 resulted in seven questions addressing the following elements: 1) care team attention to patients' physical symptoms, 2) emotional symptoms, 3) environment o

SUBMITTER: Saunders CH 

PROVIDER: S-EPMC9162500 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature