Facilitating and supporting the engagement of patients, families and caregivers in research: the "Ottawa model" for patient engagement in research.

ABSTRACT:

Background

Patient engagement is increasingly being recognized as a critical component of health research; however, institutional models for building infrastructure and capacity for patient engagement in research are limited. There is an opportunity to create reproducible and scalable models of patient engagement in research and share best and promising practices.

Main body

In this article, we describe the development and features of the framework for the Ottawa Patient Engagement in Research Model at The Ottawa Hospital (TOH) and the Ottawa Hospital Research Institute (OHRI). Key components of the model include: a Patient and Family Engagement Program at TOH, which recruits, educates, and supports patients, families and caregivers to engage in clinical care, governance, and

SUBMITTER: Vanderhout S 

PROVIDER: S-EPMC9172149 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature