A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: A holistic, flexible, and relational approach is recommended.

ABSTRACT:

Background

Broad consensus exists on the relevance of advance care planning in dementia. Although people with young-onset dementia and their family are hypothesized to have distinct needs and preferences in this area, they are hardly ever included in studies.

Aim

We aim to explore the experiences with and views on advance care planning of people with young-onset dementia and their family caregivers.

Design

A qualitative study was conducted, analyzing semi-structured interviews through the method of constant comparative analysis.

Setting/participants

We included 10 people with young-onset dementia and 10 of their family caregivers in Flanders.

Results

Participants lacked awareness about the concept of advance care planning, especially as a communication p

SUBMITTER: Van Rickstal R 

PROVIDER: S-EPMC9174579 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature