Primary motivations for and experiences with paediatric minimally invasive tissue sampling (MITS) participation in Malawi: a qualitative study.

ABSTRACT:

Objective

To understand family member consent decision-making influences and experiences in Malawi in order to inform future minimally invasive tissue sampling (MITS) studies.

Design

Qualitative study.

Setting

Queen Elizabeth Central Hospital (QECH) in Blantyre, Malawi, which serves as the central referral hospital for southern Malawi and where MITS participants were recruited from.

Participants

Families of paediatric MITS participants.

Methods

We conducted in-depth interviews with 16 families 6 weeks after the death of paediatric MITS participants. Data were analysed using a combination of thematic content and theoretical framework approaches to explain the findings.

Results

Improved cause of death (CoD) ascertainment was the principal motivator

SUBMITTER: Lawrence S 

PROVIDER: S-EPMC9185590 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature