Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.

ABSTRACT:

Background

Risk assessment for hereditary cancer syndromes is recommended in primary care, but family history is rarely collected in enough detail to facilitate risk assessment and referral - a roadblock that disproportionately impacts individuals with healthcare access barriers. We sought to qualitatively assess a literacy-adapted, electronic patient-facing family history tool developed for use in diverse, underserved patient populations recruited in the Cancer Health Assessments Reaching Many (CHARM) Study.

Methods

Interview participants were recruited from a subpopulation of CHARM participants who experienced barriers to tool use in terms of spending a longer time to complete the tool, having incomplete attempts, and/or providing inaccurate family history in comparison to

SUBMITTER: Mittendorf KF 

PROVIDER: S-EPMC9188215 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature