Research priorities for autosomal dominant polycystic kidney disease: a UK priority setting partnership.

ABSTRACT:

Objectives

Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited kidney condition, accounting for 7%-10% of patients with kidney failure. Fundamental basic science and clinical research on ADPKD is underway worldwide but no one has yet considered which areas should be prioritised to maximise returns from limited future funding. The Polycystic Kidney Disease Charity began a priority setting partnership with the James Lind Alliance (JLA) in the UK in 2019-2020 to identify areas of uncertainty in the ADPKD care pathway and allow patients, carers and healthcare professionals to rank the 10 most important questions for research.

Design

The scope covered ADPKD diagnosis and management, identifying new treatments to prevent/slow disease progression and p

SUBMITTER: Harris T 

PROVIDER: S-EPMC9204016 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature