Engaging Patients via Online Healthcare Fora: Three Pharmacovigilance Use Cases.

ABSTRACT: Increasingly, patient-generated safety insights are shared online, via general social media platforms or dedicated healthcare fora which give patients the opportunity to discuss their disease and treatment options. We evaluated three areas of potential interest for the use of social media in pharmacovigilance. To evaluate how social media may complement existing safety signal detection capabilities, we identified two use cases (drug/adverse event [AE] pairs) and then evaluated the frequency of AE discussions across a range of social media channels. Changes in frequency over time were noted in social media, then compared to frequency changes in Food and Drug Administration Adverse Event Reporting System (FAERS) data over the same time period using a traditional disproportionality method. Al

SUBMITTER: Powell G 

PROVIDER: S-EPMC9204179 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature