Evaluation of routinely collected records for dementia outcomes in UK: a prospective cohort study.

ABSTRACT:

Objectives

To evaluate the characteristics of individuals recorded as having a dementia diagnosis in different routinely collected records and to examine the extent of overlap of dementia coding across data sources. Also, to present comparisons of secondary and primary care records providing value for researchers using routinely collected records for dementia outcome capture.

Study design

A prospective cohort study.

Setting and participants

A cohort of 25 639 men and women in Norfolk, aged 40-79 years at recruitment (1993-1997) followed until 2018 linked to routinely collected to identify dementia cases. Data sources include mortality from death certification and National Health Service (NHS) hospital or secondary care records. Primary care records for a subset of the

SUBMITTER: Hayat S 

PROVIDER: S-EPMC9204445 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature