Patient and Caregiver Perspectives on Palliative Care in End-Stage Liver Disease.

ABSTRACT: Background: Specialty palliative care (PC) is underutilized for patients with end-stage liver disease (ESLD); however, studies exploring patient and caregiver perceptions of PC are lacking. Objectives: To explore patient and caregiver knowledge, perceptions, and preferences about PC in ESLD management. Setting/Subjects: Individuals with ESLD and their informal caregivers were recruited from a large academic medical center in the United States. Design: We conducted semistructured interviews with 15 patients with ESLD and 14 informal caregivers. Purposive sampling was used to balance both transplant-listed and transplant-ineligible patients. We used a brief description of PC to explore participants' knowledge, perceptions, and preferenc

SUBMITTER: Donlan J 

PROVIDER: S-EPMC9208853 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature