Transcultural Validation of a Spanish Version of the Quality of Life in Epidermolysis Bullosa Questionnaire.

ABSTRACT:

Introduction

Epidermolysis bullosa (EB) is a relatively infrequent genodermatosis for which there is still no cure, and which impacts the quality of life of those that are affected by it. The Quality of Life evaluation in Epidermolysis Bullosa (QoLEB) questionnaire was specifically developed for English-speaking persons with EB.

Objectives

To undertake the transcultural adaptation and analysis of the psychometric properties of a Spanish version of the QoLEB questionnaire.

Method

We designed an observational study to implement the process of translation and validation of the scale in accordance with World Health Organisation guidelines. We assessed the content validity of the Spanish version with the participation of 33 adult patients who presented with four principal

SUBMITTER: Villar Hernandez AR 

PROVIDER: S-EPMC9222315 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature