Lived experience of people with adrenocortical carcinoma and associated adrenal insufficiency.

ABSTRACT:

Introduction

Adrenocortical carcinoma (ACC) is a rare cancer with an annual incidence of 0.7-2 cases per million population and 5-year survival of 31.2%. Adrenal insufficiency (AI) is a common and life shortening complication of ACC, and little is understood about how it impacts on patients' experience.

Objective

To understand patients' lived experience of the condition, its treatment, care process, impact of AI on ACC wellbeing, self-care needs and support.

Methods

Systematic review of MEDLINE, EMBASES, CINAHL, PsycINFO and Open Grey for studies published until February 2021. All research designs were included. The findings underwent a thematic analysis and narrative synthesis. Studies quality was assessed using mixed method assessment tools.

Results

A total o

SUBMITTER: Yeoh P 

PROVIDER: S-EPMC9258998 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature