Diagnosis of DSD in Children-Development of New Tools for a Structured Diagnostic and Information Management Program within the Empower-DSD Study.

ABSTRACT:

Background

Current recommendations define a structured diagnostic process, transparent information, and psychosocial support by a specialized, multi-professional team as central in the care for children and adolescents with genital variations and a suspected difference of sex development (DSD). The active involvement of the child and their parents in shared decision-making should result in an individualized care plan. So far, this process has not been standardized.

Methods

Within the Empower-DSD study, a team of professionals and representatives of patient advocacy groups developed a new diagnostic and information management program based on current recommendations and existing patient information.

Results

The information management defines and standardizes generic ca

SUBMITTER: Wechsung K 

PROVIDER: S-EPMC9267843 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature