Families with complex needs: an inside perspective from young people, their carers, and healthcare providers.

ABSTRACT: Complex health needs are demanding and often require additional medical, psychological and social support. All those involved (e.g., patients, carers, professionals) face a unique set of challenges and needs, especially in families where the patient is a child or a young person with a lifelong condition. The aim of the study was to explore carers' and young people's needs when living with long term conditions, as well as the views of the healthcare professionals supporting them. Semi-structured interviews with 30 participants (11 professionals, 10 parents, and 9 young people) were conducted. Interviews focused on 3 main areas-(1) medical needs, (2) psychological needs, and (3) communication needs-and were analyzed using thematic analysis. Four main themes emerged: (1) Acceptance takes time

SUBMITTER: Radu M 

PROVIDER: S-EPMC9270528 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature