A population-based linked cohort of cancer and primary care data: A new source to study the management of cancer in primary care.

ABSTRACT:

Objective

Insight into the management of cancer in the primary care setting is pivotal to improve early recognition and survival of cancer patients. Therefore, the Netherlands Cancer Registry (NCR) was linked to the General Practitioner (GP) Database of the PHARMO Database Network to make this research possible.

Methods

The NCR collects tumour data on all newly diagnosed cancer patients, whereas the GP Database comprises data from electronic patient records registered by GPs. Databases were linked using a probabilistic record linkage technology.

Results

Through record linkage of the NCR and the GP Database, we have established a large population-based cohort (NCR-PHARMO GP cohort) of 135,868 cancer patients. Data are available on demographics, tumour characteristics,

SUBMITTER: Kuiper JG 

PROVIDER: S-EPMC9285474 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature