A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy.

ABSTRACT:

Introduction

Haemophilia carriers (HCs) face considerable haemostatic and psychological challenges during reproduction.

Aim

To explore the perspectives of HCs on healthcare in the current standard of haemophilia treatment during all reproductive phases: preconception, pregnancy, childbirth and the postpartum period. In addition, we examined the psychological impact of haemophilia during these phases.

Material and methods

Focus group discussions (FGDs) and semi-structured interviews were conducted with HCs in January/February 2020 until data saturation was reached. All sessions were recorded, transcribed verbatim and analysed by two independent researchers through thematic content analysis using MAXQDA® software. The results were then discussed within the research team

SUBMITTER: Punt MC 

PROVIDER: S-EPMC9290707 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature