Research priorities for children with neurological impairment and medical complexity in high-income countries.

ABSTRACT:

Aim

To identify the highest-priority clinical research areas related to children with neurological impairment and medical complexity among clinicians and caregivers.

Method

A modified, three-stage Delphi study using online surveys and guided by a steering committee was completed. In round 1, clinicians and family caregivers suggested clinical topics and related questions that require research to support this subgroup of children. After refinement of the suggestions by the steering committee, participants contributed to 1 (family caregivers) or 2 (clinicians) subsequent rounds to develop a prioritized list.

Results

A diverse international expert panel consisting of 49 clinicians and 12 family caregivers provided 601 responses. Responses were distilled into 26 clinical

SUBMITTER: Diskin C 

PROVIDER: S-EPMC9291325 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature