Coordinating physiotherapy care for persons with haemophilia.

ABSTRACT:

Introduction

Physiotherapy is highly recommended for persons with haemophilia (PWH), to regain functioning after bleeding and to maintain functioning when dealing with haemophilic arthropathy. However, many PWH live too far from their Haemophilia Comprehensive Care Centre (HCCC) to receive regular treatment at their HCCC. Physiotherapists in primary care may have limited experience with a rare disease like haemophilia.

Aim

To explore experiences of stakeholders with primary care physiotherapy for PWH and develop recommendations to optimize physiotherapy care coordination.

Methods

A RAND approach was used, consisting of a Delphi procedure with e-mailed questionnaires and a consensus meeting. Included stakeholders were PWH, physiotherapists from HCCC's and primary care

SUBMITTER: Timmer MA 

PROVIDER: S-EPMC9292005 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature