Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations.

ABSTRACT: Survival rates of patients with visceral congenital malformations have increased considerably. However, long-term morbidity in these patients is high. In the last decades, these circumstances have led to a shift in goals of caretakers and researchers with a new focus on patients' perspectives and long-term morbidity. Health-related quality of life (HrQoL) is the most commonly used patient-reported outcome measure to assess the impact of chronic symptoms on patients' everyday lives. Most pediatric surgical conditions can cause a significantly decreased HrQoL in affected patients compared to the healthy population. In order to guarantee life-long care and to minimize the impact on HrQoL a regular interdisciplinary follow-up is obligatory. The period of transition from child-centered to adult

SUBMITTER: Uecker M 

PROVIDER: S-EPMC9294337 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature