Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey.

ABSTRACT:

Introduction

To capture the patient's attitude toward remote monitoring of motor neuron disease (MND) in care and clinical trials, and their concerns and preferences regarding the use of digital technology.

Methods

We performed an international multi-centre survey study in three MND clinics in The Netherlands, the United Kingdom, and Australia. The survey was co-developed by investigators and patients with MND, and sent to patients by e-mail or postal-mail. The main topics included: patients' attitude towards remote care, participating in decentralized clinical trials, and preferences for and concerns with digital technology use.

Results

In total, 332 patients with MND participated. A majority of patients indicated they would be happy to self-monitor their health from

SUBMITTER: Helleman J 

PROVIDER: S-EPMC9294855 | biostudies-literature | 2022 Nov

REPOSITORIES: biostudies-literature