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Dataset Information

Family history recording in UK general practice: the lIFeLONG study.


ABSTRACT:

Background

In order to integrate genomic medicine into routine patient care and stratify personal risk, it is increasingly important to record family history (FH) information in general/family practice records. This is true for classic genetic disease as well as multifactorial conditions. Research suggests that FH recording is currently inadequate.

Objectives

To provide an up-to-date analysis of the frequency, quality, and accuracy of FH recording in UK general/family practice.

Methods

An exploratory study, based at St Leonard's Practice, Exeter-a suburban UK general/family practice. Selected adult patients registered for over 1 year were contacted by post and asked to complete a written FH questionnaire. The reported information was compared with the patients' electr

SUBMITTER: Dineen M 

PROVIDER: S-EPMC9295608 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature