Perspectives on adapting a mobile application for pain self-management in neurofibromatosis type 1: results of online focus group discussions with individuals living with neurofibromatosis type 1 and pain management experts.

ABSTRACT:

Objective

Neurofibromatosis type 1 (NF1) is a genetic disorder in which chronic pain commonly occurs. The study sought to understand the needs of individuals with NF1 and pain management experts when adapting a pain self-management mobile health application (app) for individuals with NF1.

Design

We conducted a series of online, audio-recorded focus groups that were then thematically analysed.

Setting

Online focus groups with adults currently residing in the USA.

Participants

Two types of participants were included: individuals with NF1 (n=32 across six focus groups) and pain management experts (n=10 across three focus groups).

Results

Six themes across two levels were identified. The individual level included lifestyle, reasons for using the mobile app a

SUBMITTER: Grau LE 

PROVIDER: S-EPMC9295671 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature