COVID-19 and children with congenital anomalies: a European survey of parents’ experiences of healthcare services

ABSTRACT:

Objective

To survey parents and carers of children with a congenital anomaly across Europe about their experiences of healthcare services and support during the COVID-19 pandemic.

Design

Cross-sectional study.

Setting

Online survey in 10 European countries, open from 8 March 2021 to 14 July 2021.

Population

1070 parents and carers of children aged 0–10 years with a cleft lip, spina bifida, congenital heart defect (CHD) requiring surgery and/or Down syndrome.

Main outcome measures

Parental views about: the provision of care for their child (cancellation/postponement of appointments, virtual appointments, access to medication), the impact of disruptions to healthcare on their child’s health and well-being, and satisfaction with support from medica

SUBMITTER: Latos-Bielenska A 

PROVIDER: S-EPMC9301497 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature