Social participation is reduced in type 3 Von Willebrand disease patients and in patients with a severe bleeding phenotype.

ABSTRACT:

Introduction

The negative impact of haemophilia on social participation is well established in previous studies, however, the impact of Von Willebrand disease (VWD) on social participation has not been studied.

Aim

To compare the social participation of a large cohort of VWD patients in the Netherlands with the general Dutch population. In addition, to identify factors associated with social participation in VWD.

Methods

Patients participating in the "Willebrand in the Netherlands" study completed an extensive questionnaire on educational level, absenteeism from school or work, and occupational disabilities.

Results

Seven-hundred and eighty-eight VWD patients were included (mean age 38.9 years, 59.5% females), of whom 136 children < 16 years. Adult patients wit

SUBMITTER: Kempers EK 

PROVIDER: S-EPMC9304182 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature