A qualitative interview study to explore adolescents' experience of alopecia areata and the content validity of sign/symptom patient-reported outcome measures.

ABSTRACT:

Background

The content validity (appropriateness and acceptability) of patient-reported outcome (PRO) measures for scalp hair loss, eyebrow loss, eyelash loss, nail damage and eye irritation has been demonstrated in adults with alopecia areata (AA) but not adolescents.

Objectives

To explore the content validity of the suite of AA PRO measures and accompanying photoguides in an adolescent sample.

Methods

Semi-structured, 90-min, combined concept elicitation and cognitive interviews were conducted face-to-face with adolescents who experienced ≥ 50% AA-related scalp hair loss. Transcripts underwent thematic and framework analysis.

Results

Eleven adolescents (aged 12-17 years, 55% female, 45% nonwhite) diagnosed with AA for 5·9 years (mean) participated. Participan

SUBMITTER: Macey J 

PROVIDER: S-EPMC9305453 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature