Patient-reported outcomes in autosomal inherited bleeding disorders: A systematic literature review.

ABSTRACT:

Aim

Currently, it is unknown which patient-reported outcomes are important for patients with autosomal inherited bleeding disorders. Therefore, the purpose of this study is to systematically review the available literature assessing patient-reported outcomes and their measurement methods in autosomal inherited bleeding disorders.

Methods

The Embase, Medline ALL, Web of Science Core Collection, Cochrane Central Register of Controlled Trails and Google Scholar databases were searched from inception until 14 August 2020. Studies on patient-reported outcomes in patients with von Willebrand disease, inherited platelet function disorders and coagulation factor deficiencies were included.

Results

Twenty-one articles met the inclusion criteria. Three studies were assessed as

SUBMITTER: van Hoorn ES 

PROVIDER: S-EPMC9305757 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature