Identifying key components of a web-based long term care planning intervention for family caregivers of individuals with intellectual/developmental disabilities.

ABSTRACT:

Background

Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice.

Methods

We conducted focus groups with 49 primary caregivers of individuals with intellectual or developmental disabilities in NY, PA, OH, DE, and TX to identify barriers and facilitators of LTC planning, review existing tools, and identify critical features for web-based LTC planning interventions. Participants also answered questions on demographic characteristics and functional status.

Results

NVivo qualitative analysis software was used to analyse focus groups using a grounded theory approach. Caregivers ide

SUBMITTER: Chicas VE 

PROVIDER: S-EPMC9313859 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature