Adapting user-centered design principles to improve communication of peer parent narratives on pediatric tracheostomy.

ABSTRACT:

Background

Parents who have to make tracheostomy decisions for their critically ill child may face forecasting errors and wish to learn from peer parents. We sought to develop an intervention with peer parent narratives to help parents anticipate and prepare for future challenges before making a decision.

Methods

To ensure that the intervention reflects parents' needs (rather than experts' opinions), we adapted a user-centered design (UCD) process to identify decision-critical information and refine the presentation format by interviewing parents who had tracheostomy decision making experience. Phase 1 (n = 10) presented 15 possible forecasting errors and asked participants to prioritize and justify the problematic ones. It also asked participants to comment on the draft nar

SUBMITTER: Yan H 

PROVIDER: S-EPMC9316812 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature